Experience with Lupus?

[Bullshot]

I have reason to be concerned for my 15yo daughter following various vague symptoms and now initial blood tests. Very early in looking into it but have high chromatin antibodies, low C4C, Reynoud’s syndrome in hands, chronic headaches and fatigue. She has no idea what is going on so far and we are looking for good rheumatologist this week. Worried and looking for any experiences / advice.

PMs welcome.

 

[Nick87]

No help with that. But hoping everything plays out as best it can. Good luck.

 

[Bullshot]

Sorry this isn’t hunting related

 

[Nick87]

Sorry this isn’t hunting related

No need to apologize for putting this here imo.

 

[Bigjay73]

Sorry this isn’t hunting related

Your family is HT related

 

[Wildabeest]

Good luck getting into a rheumatologist. I was told 6-9 months to get in assuming my blood work came back with positive rheumatoid markers. It didn’t, and I was basically told you’re SOL. Fortunately I had numerous contacts in the healthcare field and was able to get in. Condition is still undiagnosed. I basically have all the symptoms of a rheumatoid or autoimmune condition, but nothing in the testing they’ve done can pinpoint it. For awhile I was convinced that all the blood tests were the treatment - drain all my blood and see if that fixes it.

What I’ve learned through this whole ordeal over the past year is that medicine is an inexact science. I’ve also learned that you have to be your own strongest advocate. Best of luck to you and her.